When Doom and Gloom stare you in the face – or maybe not…

April Cleek

It was 2010 and I was still traveling, still sacrificing, and still trying to start a family. I get a call from my Mom and with her voice quivering on the other end she says, “Your Dad is on his way to the ER, I think he just had his 3rd heart attack” – she was right. Dad previously had two other major heart attacks and thankfully survived. For him to have a third, we knew in our hearts that the probability of a happy ending was not as promising. Two weeks after Dad’s heart attack, my Mother returned to work and was given her notice that it would be her last day. Mom had been there for 10 years and did not see this coming at all; they were simply doing cutbacks. Lastly, they lived in South Florida and since the recession, their house was upside down at least…

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Designing a Patient Friendly Conference



Blog post by Colin Hung

Over the past 3 days I have been actively following the Stanford Medicine X conference (#MedX) through Twitter and via the live feed of the plenary sessions. I have never been to #MedX (I’m hoping to go next year) but from what I have seen and from what many others have said – this conference sets the standard when it comes to (a) patient involvement, (b) taking care of attendee needs and (c) meaningful presentations.

Patient Participation at MedXIn just a few years, Larry Chu (@LarryChu), has established #MedX as THE CONFERENCE to attend for patient advocates, researchers, physicians, nurses, IT folks and of course, for patients themselves. In fact, this year’s event had the highest ratio of patient participants: 35% (picture from Janet Freeman-Daily).

At #MedX, patients are not just passive participants. Patients, REAL patients, make up a significant portion of the presentations and…

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